Individual Study / CaG
CARTaGENE
CARTaGENE is a prospective cohort study collecting data for the investigation of modifiable environmental and lifestyle factors and the genomic determinants of chronic diseases in Quebec, Canada.
Overview
- Website
- http://www.cartagene.qc.ca/
- Investigators
-
- Contacts
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Design
- General Information on Follow Up (profile, frequency)
- Recruitment of participants was performed in two phases in 2009-2011 and 2012-2015. Since then, many follow-ups of participants were completed, some led by the CARTaGENE team, others through collaborations with different research groups with specific interests.
- Start Year
- 2009
- Recruitment target
-
- Individuals
- Number of participants
- 43,031
- Number of participants with biosamples
- 30,223
Access
Availability of data and biosamples
| Access to Data | |
| Access to Biosamples | |
|
Other
- Genetic data (Genotyping, RNA sequencing, exome sequencing and whole genome sequencing)
- Medical imaging (brain and heart MRI, ECG)
|
Availability of access information
On the study website : http://www.cartagene.qc.ca/
By contacting the access office
Sector of research
| Access to Data | Access to Biosamples | |
| Investigators from the public sector | ||
| Investigators from the private sector | ||
| Investigators from not-for-profit organization |
Transfer
| Access to Data | Access to Biosamples | |
| Can leave the study facility | ||
| Can leave the country |
Cost
| Access to Data | Fixed Cost |
| Access to Biosamples | Fixed Cost |
Marker Paper
Awadalla P, Boileau C, Payette Y, Idaghdour Y, Goulet JP, Knoppers B, Hamet P, Laberge C, on behalf of the CARTaGENE Project, Cohort profile of the CARTaGENE study: Quebec's population-based biobank for public health and personalized genomics. Int J Epidemiol, 2013; 42:1285-1299.
PUBMED 23071140Timeline
Population
Participants
The CaG cohort consists of men and women aged between 40 and 69 years and residing in metropolitan areas of Quebec at the time of recruitment.
Selection Criteria
- Minimum age
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40
- Maximum age
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69
- Countries
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- Canada
- Territory
- Montreal, Quebec, Sherbrooke and Saguenay for recruitment in 2009. Trois-Rivières and Gatineau were added for recruitment in 2012.
- Other criteria
- Participants were excluded if they were not registered in the FIPA files, if they resided outside the selected regions, lived in First Nations Reserves or long-term healthcare facilities or were in prison.
Sources of recruitment
- General Population
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- Selected sample
- Supplementary Information
- Participants were randomly chosen to be broadly representative of the population based on provincial health insurance registries—FIPA files (fichier administratif des inscriptions des personnes assurées de la Régie de l’assurance maladie du Québec (RAMQ)).
Sample Size
- Number of participants
- 43,031
- Number of participants with biosamples
- 30,223
- Supplementary Information
-
Recruitment (2009): 19,982 participants
BALSAC collaboration (2009): 11,467 participants
Residential history (2011): 11,650 participants
Occupational history (2011): 10,888 participants
Nutrition (2012): 10,071 participants
Recruitment (2012): 23,049 participants
CAHHM collaboration (2015): 1,746 participants
Health follow-up (2016): 17,004 participants
COVID-19 (2020-06): 8,187 participants
COVID-19 (2021-03): 6,264 participants
COVID-19 (2021-10): 672 participants
COVID-19 (2022-03): 3,253 participants
COVID-19 (2022-04): 580 participants
Data Collection Events
| # | Name | Data sources | Biosamples | Start | End |
|---|---|---|---|---|---|
| 0 | Recruitment (2009) |
|
|
2009 (July) | 2011 (March) |
| 1 | BALSAC collaboration (2009) |
|
2009 (July) | 2024 (June) | |
| 2 | Occupational and residential history (2011) |
|
2011 | 2011 | |
| 3 | Nutrition (2012) |
|
2012 | 2012 | |
| 4 | Recruitment (2012) |
|
|
2012 (November) | 2015 (February) |
| 5 | CAHHM collaboration (2015) |
|
|
2015 (March) | 2017 (July) |
| 6 | Health follow-up (2016) |
|
2016 (December) | 2019 (August) | |
| 7 | COVID-19 (2020-06) |
|
2020 (June) | 2020 (July) | |
| 8 | COVID-19 (2021-03) |
|
|
2021 (March) | 2021 (May) |
| 9 | COVID-19 (2021-10) |
|
|
2021 (October) | 2021 (December) |
| 10 | COVID-19 (2022-03) |
|
|
2022 (March) | 2022 (July) |
| 11 | COVID-19 (2022-04) |
|
|
2022 (April) | 2022 (June) |
Individual Studies Included
| Acronym | Name | Participants | Countries |
|---|
Harmonization Projects Included
| Acronym | Name |
|---|
Datasets
| Name | Data Collection Events | Variables |
|---|
Areas of Information Collected
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Socio-demographic and economic characteristics
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Death
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Lifestyle and behaviours
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Physical measures and assessments
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Birth, pregnancy and reproductive health history
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Laboratory measures
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Perception of health, quality of life, development and functional limitations
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Cognition, personality and psychological measures and assessments
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Diseases
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Life events, life plans, beliefs and values
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Symptoms and signs
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Preschool, school and work life
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Medication and supplements
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Social environment and relationships
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Non-pharmacological interventions
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Physical environment
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Health and community care services utilization
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Administrative information
Variables Content Summary
Areas of Information Collected
No Areas of Information Collected
No Scales Collected
Areas of Information Collected per Data Collection Event
No Areas of Information Collected
No Scales Collected
Last Update: 2025-09-09T11:43:03.705